Features

A Unique Child: Inclusion - Supporting… Stefan

An award-winning setting in Leicester is helping a boy, and his mother, cope with his rare genetic disorder, reports Charlotte Goddard

Four-year-old Stefan is a happy bundle of energy, who has been attending Allexton Day Nursery in Leicester since he was two-and-a-half. Stefan has X-linked Chondrodysplasia, a rare genetic disorder which results in malformation of a child’s cartilage, and is associated with short stature and learning difficulties.

‘There is not a lot he is not involved in here at the nursery,’ says Stefan’s key worker, nursery practitioner Claire Pratt. ‘He is very happy, and eager to explore. As soon as he arrives he is immediately running around, seeing what has been set out to play with. He loves cars, and dressing up – he is often to be seen walking around in high heels!’

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